because I can’t tell anyone else……

by ekie
we got an offer on the house.
but I can’t tell anyone
because it’s not final yet.
we also found the perfect house to move into
only it was already in agreement – wtf?
they shouldn’t do that!
it was MY house!
they have no right to buy it!
anyway, now we’re moving
in six weeks
and yet have no idea where we’re going.
I’m [...]

Mother’s Day

Let me just say this – my mother is wonderful.
Many parents know that their ASD kid is weird from the beginning, from their early childhood.  My parents never did.  They never suspected a thing.  Yet despite all this, my mother somehow accomodated me and nurtured me in every way she could.  I will not, as [...]

daily life with a disability

Some days, I barely notice my disability at all.  And then there are days like today….
I had to go to X city to get a part for the new stove.  But I mixed up two roads and ended up in Q city instead, considerably lost.  I got very upset and could not calm down.  The [...]

cold

by ekie
I haven’t written in a long time, and it’s not because I’m particularly busy….. just particularly paranoid about whether or not the web is truly as anonymous as I hope it is. 
Also, I’ve been cold.
I know, I know, it’s only January, still 2-plus months of winter to go, but I want it to end.  [...]

my new home

I have a new home on the web. Please visit http://wheelyfast.powweb.com/
The link to my blog is at the bottom of the homepage.

the place where seizures take you

by ekie
Before I saw my first seizure, I worried about it.
What would it be like?  What would I do?  What if the kid stopped breathing?  To the uninitated, a seizure is terrifying.  The first time, it is.  The first seizure a kid has is frightening.  But the 2,000th?  Not so much.
 I got a job this [...]

What do carers need? Don’t ask – you might be told

Is it just Australia that is unbelievably backward at coming to terms with people with disabilities and the family members who care for them?
Or do other countries assume you are not capable of identifying what can be done to improve the lives of family members with disabilities? As if your 24/7 experience doesn’t quite [...]

going on a bear hunt

by Ekie
There is a wonderful children’s song-game that I play with some of the kids I PCA for that goes something like this:
We’re going on a bear hunt.  We’re going to catch a big one.  I’m not scared!  Ooh, Grass.  Tall, wavy grass.  We can’t go over it, we can’t go under it, oh, no, [...]

Hmmm

By Terrible Palsy.  Cross posted at terriblepalsy.

In our local paper there is a column called “Chatroom”.  It seems its purpose is for people to send SMS messages and they get published, kinda like letters to the editor without the correct spelling.
I don’t often read the column because I get a bit shocked as to the [...]

learning

by ekie
The thing about having an ASD is that I usually don’t just ‘pick up on’ things.  I need everything spelled out to me, exactly as it is, so that I can process the information before I proceed.  Luckily, I love learning, and even though I am done with my formal education, I am still [...]