I wrote this in response to an anonymous doctor posting in the comments at Terrible Palsy. This doctor was exasperated that some parents of children with impairments become so upset with the way doctors treat them and their children that they start to feel anger toward all doctors. Parents start to assume the worst, that the next doctor will [...]
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Equal not special
Equal not special is a community of people who celebrate life's diversity.
ekie
ekie is a twenty-something disability advocate who considers herself more of a New Englander than an American. She has a non-verbal learning disability, NLD, with a side of depression, anxiety, and sensory processing disorders. Her interests include disability rights and advocacy, reading, walking, dogs and children.
wheelyfast
My name is Karen and I’m 24 years old and I live in Australia with my parents and dog whose name is Flea and some goldfish. I attend the local TAFE, and university. I love to read and write, watch movies, listen to music and I’m a motor sports fanatic. My favourite colour is purple. I have a type of cp called Spastic Quadriplegia. it affects my legs mostly and also my arms to a lesser degree. I am not affected by the CP intellectually in anyway although there seems to be an automatic assumption by the community that I am- that’s a post for another day. I use a wheelchair to get around all the time and have both an electric and a manual chair.
terriblepalsy
Sometimes, your worst fears - when realised - are not so bad after all. Life changes, but not always in a negative way. Terriblepalsy writes about a family coming to terms with having a child with a physical disability and the journey along the way ...
jodidevine
I am a proud mum to Thomas Linton Devine who was born prematurely at 28 weeks in February of 2005. Thomas had many problems and continues to have issues today, primarily his bilateral hearing loss. But life goes on and Thomas is living proof of that for me, reminding me to take each day as it comes - however hard that may be.
jfinn08
I live in Brisbane, Australia, with my husband and two children. I have a 9 year old son and a daughter who is almost four. Due to complications with her birth my daughter has Severe Quadriplegic CP. After the delivery it took the medical team 10 minutes to resuscitate my beautiful baby and on day five she was diagnosed with CP by an MRI. She spent 10 days in NICU (5 of those days on a ventilator) and then 2 weeks in Special Care. The Head of NICU told us he doubted she would live past 3 months but it is almost 4 years on and she has changed our lives in a way we could have never imagined. There have been many difficult times along the way but the good times definitely outweigh the bad. I would say that the hardest thing in dealing with her disability is lack of support, equality and inclusion.activevoice1
Let’s use strong, simple, direct communication when we want the medical, education or political systems to provide the targeted supports children with disabilities need to thrive, learn and participate in life. We must be (and say) the change we wish to see (thank you Gandhi).
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